Saturday, December 22, 2012

An Update as of 12/22/12


Bob and Megan are now in Ohio, preparing for celebrations with his family in Cleveland and then in Columbus. Megan was quite eager to take a break from all of the work that is going on at their home, including mold removal and the repainting of entire lower level. All of the constant activity and flurry of workers is difficult for Bob's sensitive system and has been overstimulating this week, leading to an increase in seizures. It will also be a blessing for him to be removed from lure of computer technology so that he can rest, relax and rejuvenate and practice what he wrote about in his poem Deep.
 
Bbo has not lost his sense of gratitute for the gift of life and his awe for "new" discoveries. We continue to be hopeful for a full recovery of his memory as things become more conscious - such as more often remembering previous conversations or having hunches about the turns to make on a trip to the store.
 
Most of all, he continues to be overwhelmed with love for his friends and family and is in the new habit of routinely expressing it! Bob is living Bishop John Shelby Spong's motto: "Love wastefully!"
 
Bob recently discovered this picture, taken of him embraced by another special member of our family, my uncle Van. The picture is from last year's annual family gathering at a church camp in Ohio.
Along with the picture, he sent me this note, "Just noticed this picture on my computer. It doesn’t get any better than this."

Given that this picture was taken a year ago, and that we are here at this Christmas looking forward to another holiday with a living Bob, he's right - it doesn't get better than this!

With joy,
       Erika

Thursday, December 13, 2012

An Update as of 12/13/12

Terrific news! Bob “graduated” from his three therapies today -- occupational therapy, physical therapy, and speech therapy! His therapists were impressed not only with the tremendous progress he has made in such a short time, but also with his motivation to push himself to keep improving. It is astonishing to watch as his brain heals and he is gradually gaining access to more and more memories.

Another exciting step along this healing journey is the assessment of his neurologist as well as the speech therapist that Bob can begin to be left on his own for short periods, meaning that he can exercise in the workout room without having to have someone with him, and that I can leave home for periods of time and he doesn’t have to come along.

One last bit of good news is that the workers in their white coveralls and masks have finished the mold remediation work in the crawl spaces under our house, next to Bob’s office, and we are both breathing a lot easier – both literally and figuratively.

We have much to celebrate as we enter this holiday season.

PS – This concluding  postscript from Bob echoes Megan’s joy and astonishment over the ways in which my brain is healing. I do a lot of sleeping these days, especially when I  challenge my brain and body hard, which is an integral part of the recovery process. If I had done more sleeping in the first place, I may have never had seizures at all (although given the mold problem, other factors may have been at play as well). One way or another, the ebb and flow of work and rest is the rhythm of life itself. Read all about it in Provisions #612 and #614, titled Get Your Rest and Vital Rhythms. Thanks for all your prayers and support.

-Megan

Monday, December 10, 2012

An Update as of 1210/12

Bob has had a really great week. His memory is improving daily and he is having more “picture” memories where he can recall actual places or events rather than just facts about those places (like the addresses of the places he has lived). He is also making gains in his perceptions of space and time. Other than two very small episodes yesterday, Bob has been seizure free for nine days now! He is very much enjoying getting back to some of the work that he enjoys, like writing Provisions. And he is back to trying to get our computers up and running properly, although he is learning that he needs to take frequent breaks.

Friday was Bob’s birthday and he felt very touched by the many expressions of love that came his way. In the evening, we ventured out to the Kiwanis Holiday party. This was a risk because we have been told to avoid the stimulation of crowds, but Bob had a wonderful time getting reconnected with his many friends in the club. They invited him to say the Invocation at the beginning of the program and he led us all in a very heartfelt prayer of gratitude. They also sang him a rousing rendition of Happy Birthday!

This afternoon, we had a very encouraging visit with Bob’s neurologist. Dr. Marsteller was very pleased with the progress Bob has made in the past month and at Bob’s motivation to push himself. He indicated that with brain injuries, making a lot of progress in the early months is an important indicator for the eventual outcome. He also noted that the brain is the slowest part of the body to heal and that continued progress can be seen for up to two years from the precipitating injury. Bob was delighted because the doctor didn’t think that he needed to be supervised quite so closely, which meant that when we got home Bob took down the sign on the door to the workout room reminding him that he should have some company when he was out there. He can now resume his early morning workouts when he is up before I am.

We also are in the midst of a huge project of mold remediation in the crawl space under our house. Our house is built into a hill and it seems that moisture has been seeping through the exposed dirt floors of the two crawl spaces, as well as condensing on the air conditioning ducts in summer, creating the conditions for mold to grow. We may never know the extent to which all of this mold was a precipitating factor in Bob’s illness, but it certainly makes sense to take care of it once we became aware of it (thanks to the prodding of Bob’s sister Laurel). Today we had four big trucks in our driveway and men wearing coveralls and face masks that made them look like astronauts who were working on cleaning out and sealing the ductwork throughout our house. Various crews will be here all week to get done what needs to be done.

So between getting Bob to five different kinds of therapies as well as doctor’s appointments, and beginning to get back to work at least a little, and keeping in touch with so many of the people we love, life is busy and rich and full. It is clear that we still have a long road ahead of us, but day by day life is inching back toward normal life. And that is a wonderful thing!

-Megan

Monday, December 3, 2012

An Update as of 12/3/12

Sometimes the vagaries of what Bob remembers and what he doesn’t makes for some funny moments.

Last night we had a stressful evening when Bob’s new computer refused to start. That put him right back into the very project that was so stressing him out at the time that he got sick –setting up three new computers. In taking apart the computer, which was challenging for him but he did it successfully, he replaced the hard drive with a second hard drive that he had been formatting back in August. Because it was formatted before Daylight Savings Time, when the computer came back online, the time was incorrect. Bob called out, “What’s that telephone number you call to find out what time it is?”

Now that’s a blast from the past!

I am pleased to report, though, that Bob is practicing what he preaches and he has been taking regular breaks from the stresses of computer set-up as he becomes aware of the need to rest, both last evening and throughout the day today. That is a terrific new skill set for him! And he has somehow remembered how to get not one but two computers up and running. Amazing, what the mind can do! 

-Megan

Friday, November 30, 2012

An Update as of 11/30/12

These past two mornings, we have awoken to the beautiful sight of the full moon setting against the pinks and purples of the morning sky, with a double dose of this all reflected in the still waters of Queens Lake. We have stood in quiet wonder. Part of Bob's new, more emotional way of being in the world has included a deeper awareness of and appreciation of beauty. It has also meant a deeper response to the cards, postcards, and email messages he has recieved, with tears coming much more easily than ever have before.

Bob continues to work on improving his memory. In one of the many strange mysteries that has characterized this whole process, yesterday as we were exercising on treadmill and elliptical, we turned on the TED Talks (technology, entertainment, and design). We chose a short selection, and then clicked "Play All". Well, the second selection to play was a full length piece on improving your memory! The point that was made was that although our society has so many external memory supports that having a good memory is no longer prized as it once was, but that with effort and attention, anyone can improve their memory.

It has been fascinating to watch Bob regain different types of memory as time goes along. The first memory to return has been for people, names, and relationships, which continues to be his strongest area of memory. Sometimes it is TOO strong, with Bob having a sense of familiarity or deja vu for strangers who wait on us or who we encounter at random. The next type of memory to return was facts, as he was able to recall important dates, addresses, and phone numbers from throughout his life. The third kind has been procedural knowledge, and Bob has been able to once again don his superman cape and fix things around the house that I don't begin to know how to do (although occasionally he knows just enough to be dangerous!).

The last kind of memory, the memory that is still not back yet, is episodic memory or memory for events. Bob looks at a map of places we have traveled, he is perplexed and sad not to have any memory of any of those trips. But last night we had an exchange that made me hopeful that they are still in there, just waiting for us to rebuild the pathways to retrieve them.

Bob mentioned that he had noticed on the map that we had visited Viet Nam. He guessed that we had visited our friends Mason and Bing while we were there. I confirmed that that was correct, and tested him further by asking the names of their childen, which he remembered. Then he asked where we'd been just before Viet Nam, and I told him we'd flown from Manila. He asked what we'd been doing there, anf I replied that we'd been speaking at the EARCOS conference. Without hesitation, he came out with "the East Asia Regional Council of Overseas Schools." Wow! I have to think twice before I can say that. It is still factual knowledge rather than a memory of the event itself, but I take it as a hopeful sign.

Thank you for your continued care and support.

Megan

Receive LifeTrek Provisions Communications

It's Bob himself, back from the dead, one might say, to begin to weigh in on the blog that is following my own life trek. What a concept! Although you can keep tabs on a lot that's going on right here with the blog (I am doing better every day, but I am not all the way healed), I have again started to send out my email newsletter, LifeTrek Provisions, which will give you additional perspectives and reflections on the trek of life.

If you want to receive that newsletter on a periodic basis (it used to be weekly, but I will now be less compulsive about that publishing schedule) you can enter your email address and first name at the top of our main website: http://www.lifetrekcoaching.com. Enjoy!

Wednesday, November 28, 2012

A Poem from Bob

I woke up this morning thinking I needed / wanted to write a poem called “Unbidden” and guess what – I already did! It was the theme poem for this year (you both know that I write and send out a new poem for each year as my signature theme for the year – this poem was written at the end of 2011 and sent out on January 1, 2012). Megan and I have been reeling with the awe, curiosity, and wonder of this being the poem for 2012. How did I know? Maybe the Great One knew and channeled it through me:

Unbidden
�2012 Bob Tschannen-Moran

Things happen
Overtaken by events
Emotions race
Unbidden

Blocks happen
Stifling creativity
Urgency impairs
Unbidden

Insights happen
Discerning truths
Clarity emerges
Unbidden

Feelings happen
Spilling over
Provoking thoughts
Unbidden

Heartaches happen
Gasping for air
Confusion reigns
Unbidden

Dreams happen
Revealing secrets
Hope arises
Unbidden

Breaches happen
Sudden terminations
Swelling grief
Unbidden

Connections happen
Awakening hearts
Restoring souls
Unbidden

Yearnings happen
Moving mountains
Cleansing spirits
Unbidden

Inklings happen
Subtle noticing
What must be
Unbidden

Shifts happen
So unsettling
The sun rises
Unbidden

Dreams happen
Unleashing aspirations
Possibilities emerge
Unbidden

Sunday, November 25, 2012

An Update as of 11/25/12

This weekend was one of celebration! We had much to give thanks for, including Bob's health and the love that surrounds him. Along with that, we celebrated Megan's belated birthday and Evan's birthday (today!). Add that to a joyous gathering of families (Tschannen-Moran's, Tschannen's, and Jackson's) and you have an exciting Saturday and Sunday!

Saturday was the big day of activity, with Sunday being a day of travel. On Saturday, Bob and his family enjoyed many of the following things:

  • Multiple rounds of the game Pilgrims and Indians-- led by the Jackson children.
  • Episodes of Star Wars.
  • Kugel, buttermilk cake, pumpkin pie, and brownies!
  • Baby Everest cuddles.
  • Hot tub chats.
  • Prayers of gratitude.
  • Bob Marley jam sessions.
During our thanksgiving prayer of gratitude, every family member shared something they were thankful for. A few  of the items mentioned were:
  • Being alive!
  • The health and happiness of Everest.
  • Shelter.
  • Food.
  • Love of family members.
  • Mom!

Bob was inspired by Elek Jackson's prayer of gratitude for shelter and played Bob Marley's song "Is This Love" for us. You can enjoy it below:


 

We thank you for all the ways you have blessed our family over the past few months. Enjoy a few photos of our wonderful weekend! 
-Michelle







Friday, November 23, 2012

An Update as of 11/23/12

As you can imagine, we had an exceptionally joyful Thanksgiving this year with deep, deep gratitude for Bob’s healing, as well as for all of the love and support that has surrounded us during these past months, from family and friends as well as the great cloud of witnesses who have been holding Bob in prayer. How can we not be grateful for the amazing gift of life and for the miracles of healing we have watched unfold?

The Jackson family is visiting this holiday weekend, and we have so enjoyed the warmth of their love and care. Thanksgiving was a spectacularly beautiful fall day here in Williamsburg, so we got out the rakes and blowers to rustle up all of the fall leaves we could carry and spilled them down the hill at the back of our house. Then we had SO much fun jumping off the wall and sliding and rolling down the hill of leaves, laughing all the way!

Our biggest thanks, though, were reserved for the news we received when we got the results from the MRI that Bob had on Wednesday. Like his EEG, the results showed that Bob’s brain was essentially normal with no evidence of scar tissue that might require that Bob remain on anti-seizures medications permanently! We are so, so grateful for the miracles of healing Bob has experienced.

We are postponing the turkey and trimmings until Evan, Michelle, and Everest arrive tomorrow. Even without the feast, we found plenty to be thankful for. We had fun as we drove home from dinner at the Japanese Hibachi Grill playing a game of going through the alphabet and mentioning one or more things we were thankful for each letter. There included:

A – Andres, Amy
B – Bob, Bryn, Breanne and the Bowers girls
C – Caring, Cousins everyone and everywhere!
D – Dad, Dave
E – Evan, Erika, Elek, Everest
F – Family
G – Grandpa, Language of the Giraffe
H – Hope, Hospitals, Hospitals
I – ICU Staff
J – Jennie, Jeannie, Jacksons
K – Kids
L – Love, Laurel, Lo
M – Maura, Michelle, MRI Results
N – Nurses
O – Oliver, Optimism
P – Philip, People Who Love Us, Poetry
Q – Quilts, Quiet Time
R – Resting
S – Spongebob
T – Tschannen-Morans, Tschannens
U – Universe
V – Van
W – Wren, Wallace kids
X – X-rays that show no broken bones
Y – YOU!
Z – Zero seizures!

For all of Bob’s good progress, we learned today that Bob’s brain is still healing, and that sticking to a regular pattern of meals and rest times is still important. During a visit to Jamestown Settlement this afternoon we also learned that his brain is still “irritable” enough that the restrictions on crowds, stimulation, and loud noises are still advisable when a demonstration of muskets and cannons sent Bob into another worrisome “episode.”

So for those who have been keeping Bob on your prayer lists, please keep up the good work! 

-Megan

Tuesday, November 20, 2012

An Update as of 11/20/12

Great news! Just had exam / echo with cardiologist. No heart damage. In fact, no heart change since before all this happenwd. Wow! Wanted you to know.

-Bob

An Update as of 11/19.12

Oh for the joy of simple things! Evan and Michelle went looking among their toolshelf and found the red case of small screwdrivers, just as Bob had remembered it in his very first "picture" memory. It had apparently been left behind when we did work at their house earlier this summer. He was so excited to have this first memory confirmed!

Megan

Sunday, November 18, 2012

A Poem From Donnita

I felt it was a beautiful invitation into coaching.

The Invitation
It doesn't interest me what you do for a living. I want to know what you ache for, and if you dare
to dream of meeting your heart's longing.
It doesn't interest me how old you are. I want to know if you will risk looking like a fool for love, for your dream, for the adventure of being alive.
It doesn't interest me what planets are squaring your moon. I want to know if you have touched the center of your own sorrow, if you have been opened by life's betrayals or have become shriveled and closed from fear of further pain! I want to know if you can sit with pain, mine or your own, without moving to hide it or fade it, or fix it.
I want to know if you can be with joy, mine or your own, if you can dance with wildness and let the ecstasy fill you to the tips of your fingers and toes without cautioning us to be careful, to be realistic, to remember the limitations of being human.
It doesn't interest me if the story you are telling me is true. I want to know if you can disappoint another to be true to yourself; if you can bear the accusation of betrayal and not betray your own soul; if you can be faithless and therefore trustworthy.
I want to know if you can see beauty even when it's not pretty, every day, and if you can source your own life from its presence.
I want to know if you can live with failure, yours and mine, and still stand on the edge of the lake and shout to the silver of the full moon, “Yes!”
It doesn't interest me to know where you live or how much money you have. I want to know if you can get up, after the night of grief and despair, weary and bruised to the bone, and do what needs to be done to feed the children.
It doesn't interest me who you know or how you came to be here. I want to know if you will stand in the center of the fire with me and not shrink back.
It doesn't interest me where or what or with whom you have studied. I want to know what sustains you, from the inside, when all else falls away.
I want to know if you can be alone with yourself and if you truly like the company you keep in the empty moments.
by
Oriah Mountain Dreamer

An Update as of 11/18/12

Today is the day that the Lord has made; I will rejoice and be glad in it!

This is also the day that the Lord made ME, and I am having the very best birthday present I could imagine – having Bob “alive, alert, and aware!” Bob is continuing to make progress every day and we continue to be hopeful that he will make a full recovery. Bob’s basic personality is intact. As predicted by the MRI he had while he was still in a coma, he has difficulty with memory and he is very emotional. But he is very much himself.

Bob is very sweet and helpful, and is getting back to his amazing problem solving prowess. In trying to prod a recalcitrant answering machine back into service, we had just about given up and decided to go out and buy a new one. Then Bob thought that maybe we should at least try changing the battery, a 9volt battery that required a tiny screwdriver to open the casing. That’s when it happened – Bob remembered, he could actually picture, a small red case of tiny screwdrivers that he used to have! It didn’t matter that he couldn’t actually find that case when he went looking, he was just delighted to have pictured something that he hadn’t rehearsed. He did find another little screwdriver, and sure enough, with a new battery installed the answering machine sparked back to life.

Yesterday, we were trying to open a combination lock down on our dock and we couldn’t be sure that either of us remembered the combination. We tried what we thought it was again and again and it wouldn’t budge. Then we tried every other combination we could think of. We were just about to give up, when Bob suddenly thought that maybe the problem was that the lock was rusted shut and that what we needed was lock lubricant. He went and found it on the workbench, and voila, the lock slid open!

We are also rejoicing in the compound blessing of Bob’s healing. Our friend Amy who visited last weekend made such a strong empathic connection with Bob because of her own struggle with mysterious seizures over the past decade and a half. Bob was Amy’s boss when her seizures began and extended his characteristic care for her during those scary times, and they have continued a sense of connection in the intervening years. And although Bob does not remember any of Amy’s medical struggles, it was very meaningful to him to be with someone who had experienced something so similar to what he has been going through.

On Wednesday of this week, a new book came out, called Brain on Fire: My Month of Madness by Suzanne Cahalan, about her experience with autoimmune encephalitis. In the interviews and media attention around the release of this book, Amy began to connect with particulars of Suzanne’s experience that awakened curiosity about her own medical mystery. In consultation with Bryn, she discovered other seemingly unrelated aspects of her medical history that fit with the particular variation of this disease and have given her hope that the underlying condition that was causing her symptoms has been addressed and that she no longer has to live in fear of a relapse.

Because the research on this class of encephalitis only began five years ago and is in its very early stages, we have wondered what happened to people who had this condition before doctors had any clues to guide the course of their treatment. Now we know, because Amy is one of them.

Here we go, rejoicing! 

-Megan

Friday, November 16, 2012

A Poem from Stacy

If you are a dreamer, come in,
If you are a dreamer, a wisher, a liar,
A hope-er, a pray-er, a magic bean buyer...
If you're a pretender, come sit by my fire
For we have some flax-golden tales to spin.
Come in!
come in!

Shel Silverstein

Hi, my name is Stacy and I took the Wellcoaches courses. Bob was one of my favorite teachers to work with. I am also an inpatient rehab physical therapist and have been inspired by Bob's journey. This poem means that there is someone out there who accepts you as you are. I am always inspired by such lack of judgement and unconditional acceptance of another.

A Poem from Amy

Throughout my struggles I have often recited the Bene Geserit Litany Against Fear from the book Dune by Frank Herbert:

I must not fear.
Fear is the mind killer.
Fear is the little death that brings total obliteration.
I will face my fear. I will permit it to pass over me and through me and when it is gone I will turn my inner eye to see its path. Where the fear has gone there will be nothing. Only I will remain.

Since pain (both physical and emotional) has been a very common recurrence over the course of my life - I adapted Herbert's words to develop my own Litany Against Pain:

I will not be in pain.
Pain is the body killer.
Pain is the assault on the senses that prevents clarity and peace.

I will face my pain. I will channel it over me and through me and when it has passed I will focus and reflect to capture its path. I will erase that path until all remnants are gone. Only I will remain; renewed and refreshed.

I have recited both litanies time and time again as a form of therapy. Along with other forms of relaxation and cognitive behavior I have been able to not only live through some very painful ordeals but become a stronger more cognizant and thankful being because of it.

A Poem from Jeannie

I still have the hard copy of this poem Bob gave me at one of the NVC gatherings a few years ago and it was one of the many nudges he gave me that pushed me to create www.simplyrediscovered.com - a blog dedicated to sharing my own experiences, loves and learnings with others. This was a first step in giving myself permission to just be me, be more compassionate and kind to myself so in turn I could give something much bigger to others. Bob, Megan and the LifeTrek family continue to be a very important part of my life and I'm thankful everyday for these connections.

Dream Big, Author Unknown

If there were ever a time to dare,
To make a difference
To embark on something worth doing
It is now.
Not for any grand cause, necessarily –
But for something that tugs at your heart
Something that is worth your aspiration
Something that is your dream.

You owe it to yourself
To make your days count.
Have fun. Dig deep. Stretch.

Dream big.

Know, though,
That things worth doing
Seldom come easy.

There will be times when you want to
Turn around
Pack it up and call it quits.

Those times tell you
That you are pushing yourself
And that you are not afraid to learn by trying.

Persist.

Because with an idea,
Determination and the right tools,
You can do great things.

Let your instincts, your intellect
And let your heart guide you.
Trust.

Believe in the incredible power
Of the human mind
Of doing something that makes a difference.

Of working hard
Of laughing and hoping
Of lasting friends
Of all the things that will cross your path.

Next year
The start of something new
Brings the hope of something great.
Anything is possible.

There is only one you
And you will pass this way but once.

Do it right.

Thursday, November 15, 2012

A Poem from Virginia

Variation on a Theme by Rilke
(The Book of Hours, Book I, Poem I, Stanza I).

A certain day became a presence to me;
there it was, confronting me—the sky, air, light;
a being.  And before it started to descend
from the height of noon, it leaned over
and struck my shoulder as if with
the flat of the sword, granting me
honor and a task.  The day’s blow
rang out, metallic or it was I, a bell awakened,
and what I heard was my whole self
saying and singing what it knew:  I can.

Denise Levertov.  In Astley, S. (Ed.)  Staying Alive: Real Poems for Unreal Times, p. 45.  NY:  2002, Hyperion Books

Maybe
Maybe we dance from this elegant place
discarding our vulnerable bodies
like old work-clothes at the end of the day
Maybe essence enters the air flying
like monarchs in migration past roses
and rivers older than wood wizards.
Maybe meaning and magic stand up from
the landscape like summer lightning,
and for one holy moment
all questions have answers, all journeys have a home,
all living the roundness and warmth
of a stone clenched right in the hand.
Or maybe like four-year olds we
drop everything and simply run forward
dazzled again!

Roberta de Kay. P. In Fox, J.  Poetic Medicine:  The Healing Art of Poem-Making.  180. NY:  Tarcher/Putnam.

A Poem from Erika

  This was a catalyst for deciding to move into coaching full-time to work with Bob.
I will not die an unlived life.
I will not live in fear
of falling or catching fire.
I choose to inhabit my days,
to allow my living to open me,
to make me less afraid,
more accessible,
to loosen my heart
until it becomes a wing,
a torch, a promise.
I choose to risk my significance;
to live so that which came to me as seed
goes to the next as blossom
and that which came to me as blossom,
goes on as fruit.

fully alive - dawna markova

Poetry Project

As many of you know, poetry is very dear to Bob's heart. In an effort to bring joy into his life and keep him in a positive mindset, we are encouraging you to comment on this post (or e-mail Michelle: METschannen@gmail.com) with poems that have inspired you and spoken to your heart. Be sure to tell us your name and what the particular poem means to you. We'll re-post the poems here on the blog, as well as sending them along to Bob. Our hope is to make a collection of poems that can be bound into a book of inspiration for Bob to peruse as he heals. Come join in on the fun!

-Michelle

An Update as of 11/15/12

As I have “slowly come back to this life from the other more secret, moveable, and frighteningly honest world where everything began,” (David Whyte) I awoke one morning to go looking for a book on my bookshelf (The Brain that Changes Itself) and was not able to find it. Instead, I found a book of poetry by Rumi, a 13th century Persian poet and Sufi mystic. In the book I found a 3x5 file card on which I had written the following words: “I intend to be here and nowhere else. To make no one wrong. To be a blessing & a joy. To learn & embody the consciousness of Nonviolent Communication.”

This card was tucked into page 36 where Rumi had written one of my favorite stanzas: “Out beyond ideas of wrongdoing and rightdoing, there is a field. I’ll meet you there. When the soul lies down in that grass, the world is too full to talk about. Ideas, language, even the phrase each other doesn’t make any sense.” Wow. That alone was enough to speak about the journey I have been travelling since my first seizure on August 30.

But then I decided to go one step further. I randomly opened the book to a page, thinking that the poem on that page perhaps had a message for me. Given how many times I nearly died, with my heart stopping multiple times (once for 24 seconds), and given how many seizures I have had over the past two months (too many to count), the poem that I found on page 136 was profound beyond words. I would like to share it with you now, giving full credit to Megan and her love for bringing me back to life. Blessings.

Sublime Generosity

I was dead, then alive.
Weeping, then laughing.

The power of love came into me,
and I became fierce like a lion,
then tender like the evening star.

He said, “You’re not mad enough.
You don’t belong in this house.”

I went wild and had to be tied up.
He said, “Still not wild enough
to stay with us!”

I broke through another layer
into joyfulness.

He said, “It’s not enough.”
I died.

He said, “You’re a clever little man,
full of fantasy and doubting.”

I plucked out my feather and became a fool
He said, “Now you’re the candle
for this assembly.”

But I’m no candle. Look!
I’m scattered smoke.

He said, “You are the sheikh, the guide.”
But I’m not the teacher. I have no power.

He said, “You already have wings.
I cannot give you wings.

But I wanted his wings.
I felt like some flightless chicken.

Then new events said to me,
“Don’t move. A sublime generosity is
coming toward you.”

And old love said, “Stay with me.”

I said, “I will.”

You are the fountain of the sun’s light.
I am a willow shadow on the ground.
You make my raggedness silky.

The soul at dawn is like darkened water
That slowly begins to say Thank you, thank you.

Then at sunset, again, Venus gradually
changes into the moon and then the whole nightsky.

This comes of smiling back
at your smile.

The chess master says nothing,
other than moving the silent chess piece.

That I am part of the ploys
of this game makes me
amazingly happy.

-Bob

Sunday, November 11, 2012

A Few Pictures

Just a few pictures from the weekend of 11/3/12. This was the first time Bob remembered joyously being together with his nuclear family since becoming sick. Enjoy!






Saturday, November 10, 2012

An Update as of 11/10/12

This has been a busy and full week with getting settled back into life at home, with doctors appointments, therapy assessments, and lab tests to get to. To see the astonishment on the doctors’ faces as they interact with Bob, has confronted me once again with what a miracle it is that Bob survived at all, much less that he is walking around and functioning as well as he is.

The world that Bob has come home to seems strange and unfamiliar to him. In addition to cars looking different to him, clothing styles also seem strange. These memory issues have provided some moments of laughter as well. On his second night home, Bob wanted to know where his “regular” toothpaste was. When we offered him a tube of Colgate, he protested that he wanted the kind with the pump. We had to let him know that that company had been out of business for years!

As much as anyone who knows Bob knows he loves technology, it has been fun to share Bob’s delight to discover things like how he can advance pictures by sliding his finger across the screen on his phone. Last weekend as Evan, Michelle, and Everest were getting ready to leave, we began to assemble the tripod to take a family picture. As Bob came to help, he asked, “Is there enough film in the camera?”

Fortunately, Bob’s personality and intelligence are intact. He is loving and kind and thoughtful. He has actively tried to pitch in to help with some of the things he has always done. But he has needed some coaching to do even simple things like making our morning tea or loading the dishwasher. Bob is actively working on his memory issues. One afternoon, he spent time walking through the house opening cupboards and closets to try to learn where things were. His memory is slowly improving so that he is less likely to repeat something that he has just said, and more often can remember things that have happened earlier in the day. And he aced all of the logic puzzles that they gave him as part of his evaluation for services at outpatient therapy!

[Amy] While he has needed help in being reacquainted with some mundane everyday life stuff, I (Amy) have marveled in his ability to carry on with some things that show he is still the same Bob – like untangling the mixed up phone lines so that Line 1 and  2 again rang in their appropriate spots on every phone in the house.  Megan might have preferred for him to wait until he was feeling better but since I have a special familiarity with what he is experiencing at this point in his recovery I allowed him to “run with it” so to speak and complete the task as he was able and enthusiastic to do so.  Of course this probably was the reason why he had an “episode” afterwards but I know that there is a fine line between testing yourself and overdoing it. Megan is doing a yeoman’s job of allowing Bob the freedom of testing himself without becoming too anxious about the potential to inhibit the recovery process.  These last few days have been a true, sweet blessing for me in ways that I cannot express in ways succinct enough to hold your interest but perhaps I can try to write about them and share at a later date.  Suffice it to say that Bob and Megan are a testament to the benefits of a life well lived and I am so glad our paths have crossed again. Ok back to Megan….

[Megan] Some of our favorite music from the 1970s and 80s has resonated with Bob. Last night he woke up in the middle of the night humming a tune from Inti-Illimani, a Peruvian group we enjoyed early in our marriage and had recently rediscovered. By the time I woke up this morning, Bob had dug up not the CD we had purchased last year but a cassette tape of their music that he found in a drawer somewhere and had blaring from the stereo!

Despite how unsettling and scary this whole experience is for Bob as well as the frustration of continuing to struggle with “episodes”, he has also persisted in his deep, deep gratitude just to be alive. We have been so blessed to have our friend Amy visiting from Ohio. She and Bob have particularly been glorying in the amazing birdlife and wildlife in our area. This morning they got up early and went down to the dock to watch the birds, with the Blue Herons, the migrating yellow-billed cormorants, and even a bald eagle. This afternoon they sat on the back corner of the deck for several hours, again enjoying the eagle, a Pileated Woodpecker, and many other beautiful birds. The simple pleasures of life have taken on new meaning and significance as we know more deeply what a beautiful gift they really are.

[Bob] Yes, this is me again. What pure pleasure and mystery it is to be coming back to this life from “other more secret, moveable and frighteningly honest world where everything began” (David Whyte). The process is ongoing with incredible highs and lows. One minute you think, “I am back and everything is fine,” then the next minute the depths of confusion and the full flush of an “episode” return. Wave after wave. A whole new moment of life on the edge of goodness and grace, terror and transformation.

I know, for sure, that this experience is changing me in positive and permanent ways. You can’t go to the brink of death itself without noticing that life has a way of coming back to itself. Then, having noticed, you pay attention to even the smallest things with thanksgiving and love. My sense is that I am becoming a more sensitive and caring soul, even though those were qualities I intentionally cultivated before. They now have a deeper, more spiritual nature. My marriage with Megan is going to end up the better for our having gone through this even though it has been so hard and miserable for us both. And we are definitely going through this together.

When, in marriage, they talk about how the “two are one,” this is what they mean. We share the highs and lows and this sharing is transformational. We use that word so casually, “transformation.” But transformation is tough. If you make it through, nothing is ever the same. Life is better. Life is good.

Those of you who are interested will read a lot more about this in the book that will emerge from this experience. “Seized by Life: Recovering Wholeness One Day at a Time.” I can hardly wait to start writing and yet there is absolutely no hurry at all. In fact, that is the most amazing part of my current reality. There is no sense of time or responsibility. I am just here, now, in the present, being all that I can be, as best as I can be. And right now the moment is perfect as the music plays and my friends and family sit all around, like that great cloud of witnesses that surround the angels in heaven. Thanks for sharing this moment with us on the trek of life. J I love you all.

Megan, Amy, and Bob

Saturday, November 3, 2012

An Update as of 11/3/12


Dorothy was right. There’s no place like home; there’s no place like home; there’s no place like home.


Yesterday after saying good bye to the good folks at Health South in Charlottesville who have contributed Bob’s healing in such beautiful ways, it was finally time to pack up and head for home. Bob was strong and sturdy enough to help with the final clean up of the condo and to pack up the car for the drive home. He even remembered the code to go back and forth into the building!

 
Approaching the house, Bob thought that he recognized the neighborhood, but commented that he would not be able to find his way our house. Once in the house, Bob was incredulous as he walked from room to room, exclaiming again and again “We live here? I can’t believe we live here!” It took some time, but before long a sense of familiarity began to sink in and he once again began to recognize this space as home.

 
By bedtime, Bob was feeling happy and content to finally be going to sleep in his own bed.

 
This morning, we took our time getting started on the day. Bryn joined us as we all chatted about all that we had been though in these past two months. Bob brought us all tea in bed. Afterwards, the three of us went out to workout in the workout room, rocking along to Paul Simon’s Graceland, which was the soundtrack to the our family roadtrips as our kids were growing up. The lyrics took on new meaning as we sang along to words like:

 

-       These are the days of miracle and wonder.

-       This is how we begin to remember.

-       This is the powerful pulsing of love in our veins.

 

By midday, Evan, Michelle, and Everest arrived, bringing a surprise visitor: Andres! We’ve spent a calm and happy day together just enjoying being together. Bob worked on refilling the hot tub and getting all the chemicals balanced the way they needed to be. He also worked with Evan on setting up an office in the dining room, and upgrading his computer. Bob still struggles with a sense of time and with memory issues, but it is getting better. The day was topped off by Thai food, S’mores and most of all a beautiful sense of gratitude for the opportuinity to go on with our lives together.

 
Life is good.

-Megan

Friday, November 2, 2012

Postcard Project

Friends-

The most wonderful thing is happening today.... Bob and Megan are moving back home to Williamsburg! This has been greatly anticipated by both Bob and Megan and they'll have both of their children, Bryn and Evan, with them to help celebrate this wonderful milestone.

As we all know, Bob's forward progress continues. These next few months are critical in regards to his recovery. Moving back home, while a wonderful treat, will also be a transition into a new normal for Bob and Megan. One of the most helpful things right now is a positive attitude and joy. These two things will hopefully carry Bob through his recovery and bring peace to Megan's heart.

In order to help them keep their spirits up, I am beginning a postcard project. Those of you wanting to send a positive greeting to Bob and Megan can do so by e-mailing me (METschannen@gmail.com) your name, mailing address, and the number of postcards you'd like to send them. I'll then mail you those postcards pre-addressed and stamped. All you have to do is write a sweet message and drop it in the mail. The postcards are pretty basic, so feel free to decorate them. Don't hesitate to ask for more than one postcard, also. In fact, if you want some for your church, community group, etc, just let me know in the e-mail.

My hope is that we can fill their mailbox daily with little greetings of love, joy, and hope from all of the people who care so much about them. Both Bob and Megan have stated multiple times throughout this process that they believe that they wouldn't be where they are without the support of all of you. Let's continue blessing them with our love and support with postcards!

-Michelle

Thursday, November 1, 2012

INCREDIBLE Update!!

Hi everyone! This blog post is coming from Bob himself after having taken more than two months to recover from a rather mysterious affliction to the limbic part of my brain. At this point I keep getting better each day and I am encouraged by all of the people, including medical professionals such as my daughter, who promise that I can make a full recovery. Even if they are pretending, I appreciate the vote of confidence. It encourages me greatly and keeps me in the game.
 
Today was a big day with lots of activity and therapy sessions. Frankly, the best part of the day was the end of the day, when Bryn and I drove to Ben & Jerry's to get a hot fudge sundae. It was the first thing I have actually "tasted" in the entire two months. I think my taste buds had gotten out of practice but if anything would get them back in the game, a hot fudge sundae was it. It could and did. Best medicine ever!
 
In the morning I worked on a brochure and a survey with my sister-in-law, Maura Rawn, for the Center for School Transformation. These were drafted by Adrienne Tinsley, our new sales professional, and it was great to get back in the game doing what I do best: writing and creatively imagining how best to express the philosophy, energy, and talent of our team. You will be hearing a lot more from us on all of these fronts in the near future.
 
After working on the brochure, we went back to the hospital to thank all of the personnel who did such a great job of taking care of me during those early days in the hospital. My daughter Bryn had baked 2 pans of brownies which I was happy to deliver during my "victory lap" to both the ICU team and the step down unit. They were all amazed to see me walking independently with no supports and with a great big smile of my face. There were lots of hugs and tears as we celebrated the goodness of the Sustaining Spirit that calls us into being and sustains us through the dance of life itself. It was a great time that neither I nor they will soon forget.
 
In the afternoon I had two hours of therapy (Physical, Occupational, and Speech) and was pretty exhausted by the end. That led me to take an hour-long nap which was pretty unusual and refreshing. Maybe it will become a habit! The best part of recent days was getting cleared last Friday to walk around on my own with no sticks, canes, or walkers. As I become more aware of the freedom, I am feeling more like myself all the time. What a joy!
 
After my nap I spent a long time talking to family and friends until I got exhausted by all the stimulation and joy. That led me to wrap things up and that's when we went for ice cream. Now I'm home again and it's time for bed. Time flies when you have no sense of time at all! Sometimes I look up and it seems like 5 minutes have passed when it has actually been an hour or two. Other times, I look up and think it has been an hour or two when it has actually been 5 minutes. Weird.
 
I would ask for your continued prayers and support. Things are moving in the right direction and I have reason to believe that I will make a full and complete recovery. I keep telling my family to assure me of that possibility even if it's not true. We live on hope, faith and prayer more than on facts, fear or force. Keep that in mind the next time you go through a crisis of your own.
 
Until I post again, blessings upon you all. :) Bob

Monday, October 29, 2012

An Update as of 10/29/12

Bob has continued to come back more and more to himself. It was so exciting to see Bob do some original writing while editing a brochure for the Center for School Transformation yesterday afternoon. And he has been working on re-memorizing David Whyte’s poem “What to Remember on Waking.” But most spectacular of all, when I woke up this morning, Bob greeted me with the announcement that he had spent the early morning hours writing an original poem about his experience! It is thrilling to see him be creative again and to be using his special gift with words and word play. It has really brought joy to my heart.

Bob has also enjoyed getting back to some more ordinary tasks as well. Today, he carried the trash out as we left for his therapy appointments. He enjoyed the feel of his wallet in his pocket, and making a purchase at Best Buy. On the way home, we stopped for gas and after once again being astonished by the high prices, Bob managed to navigate the computerized pumps and pump the gas. As Bob has again and again said on this healing journey, “Don’t ever take normal for granted. It’s truly extraordinary to feel ordinary.”

-Megan