Dr.
Pittock, our neurologist at Mayo, told us that it might take up to four
weeks for the steroids Bob is taking to take full effect. So we have
been holding onto hope that they just needed more time. Bob had his
fourth infusion yesterday and while we have had a few seizure-free days
that have raised our hopes, the partial seizures he has been having have
not disappeared altogether as we wish they would. We were warned back
in the fall at UVA that it is difficult to get a brain that is in the
habit of seizing to stop seizing and that certainly has been our
experience since April. It has also been hard to see a pattern for what
precipitates these events. We were so pleased on Sunday when Bob had a
seizure-free day despite a busy day swimming with our grandson Everest,
playing Frisbee golf with Evan and his two friends Eric and AJ, and then
working into the evening to install a ceiling fan. And then today he
had three “episodes” on what was a relatively quiet day.
-Megan
