An Update as of 9/25/12

Today was a roller coaster day. It was mostly a day of good news and encouraging signs, punctuated by some hard moments. When we arrived at the hospital this morning, Bob’s eyes were wide open and we saw a look of recognition when he saw us. He was able to follow us with his eyes, and seemed to be understanding what we were saying. He was able to answer some yes and no questions by opening and closing his eyes, and turn his head a little.  We even had a Skype session with Bryn.

As the day went on, Bob was able to add a few more competencies. I went out for a walk after lunch, and I got a text from one of the doctors that said “Guess who is obeying some simple requests!!” I hurried right back and found that Bob was able to squeeze his hands a bit, and later he even began to wiggle his toes a tiny bit. These signs were greeted with great joy not only by us but by his nurses and the others who have been contributing to Bob’s care.

In addition to these moments of joy, though, there were some difficult moments when Bob was struggling and uncomfortable, apparently suffering from withdrawal from the pentobarbital and with taking back over more of his breathing on his own.

At the end of the day, we got the best news of all and that is that he’d had no seizures throughout the day!

Tomorrow, we hope and pray that he will remain seizure free as he gets more and more of the pentobarbital out of his system, and that he will gradually get back more and more of his facility to move his limbs and breathe on his own.

Thank you for standing with us in this journey. 

-Megan