An Update as of 9/17/12 AM

They warned us that this would be a rocky road, with two steps forward and one step back. It's just that the ups are a lot more fun than the downs. Late yesterday afternoon we learned that the EEGs showed that Bob began having seizures again and that they were increasing in frequency. So they put him on a second anti-seizure medication and watched him overnight. 

Overnight they put him back into a medically induced coma. They will leave him under for two days and try again. This afternoon he will get his second dose of one of the immune suppression medications, so that may help.

Yesterday when Bob was awake, he began to be able to follow us with his eyes a little and even wiggled his toes a little, before the seizures started again and he was once again unresponsive. At this point it is impossible to determine the extent to which his lack of responsiveness is due to the sedation medications, the after effects of the seizures, or the damage done to his brain by his misdirected immune system. That will begin to emerge in time.

We are having a quieter and more somber day than yesterday, but we are staying strong. This is the kind of course we've been told to expect. US Airways gave me a little gift in canceling Bryn's flight back to Las Vegas last evening. So I get to have her with me one more day.

Thank you all for your continued care and prayers.

Megan