We saw our neurologist at the University of Virginia today and we are feeling a little more optimistic. Apparently when they turned the Neuropace device on last Tuesday, they had a choice to start the settings at either 0.5 or 1.0. Tiara, the Neuropace engineer who will now fly to Charlottesville from Charlotte NC to be at all of our regularly scheduled doctor visits, and Dr. Fountain discussed it and decided to begin at 1.0. Unfortunately, that seemed to have irritated Bob's brain and resulted in more and more intense seizures this past week. So Dr. Fountain moved the setting back to 0.5. We are hoping that Bob does better at this level. Bob did not have any seizures yesterday and so far has not had any today. We're feeling hopeful that this will do the trick. If not, they will turn it off completely for a period of time to let Bob's brain rest and recover and then try again, starting at 0.5.
It is reassuring to know how many people are pulling for us and lifting up healing prayers for Bob. Thank you for your caring and prayers.
lots of love,
Megan
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