Today was a big day! Bob had the staples and sutures from his surgery removed, and the doctors turned on his Neuropace device so that it can begin to disrupt seizures as they begin. It has been a journey of more than a year and a half since Laurel's friend MaryLou Teare noticed a story in the Cleveland Plain Dealer about a woman with epilepsy who had the Neuropace device implanted as part of the clinical trials. MaryLou wondered if it might be something that would benefit Bob, and passed the article along to us. We are so excited to finally have it in and working! There will still be some fine tuning over the coming months, but we are hopeful Bob will respond well. Just this evening, Bob had the feeling that a seizure was starting but it did not develop into a full seizure. So the device may have vanquished its first seizure already!
We are so grateful for all of the love and support we have received over the course of his illness. Thank you, each and every one of you.
No comments:
Post a Comment