Bob continues to rest and recover. He had a relatively short seizure yesterday but was confused afterwards for longer than usual, which makes me think that his brain is still recovering from the terrible seizure on Wednesday. He also had two more during the night that left him confused and anxious.
The medical team here thinks that Bob has been overmedicated, and that this is what led to the spiral of events that landed him here. Bob is apparently a fast metabolizer of his meds. But every time we see a new doctor, their eyes pop out when they see the doses of the two anti-seizure meds Bob has been on. He has been well above the FDA recommended limits, which has worried Bryn all along. The doctors here think that these high doses have been counterproductive and may have actually been contributing to seizures. We don't expect to get much better seizure control with the lower dos but hopefully not much worse, with fewer side effects. We will also proceed with an evaluation for possible surgical options, which is a process that we had already begun with out neurology team at the University of Virginia.
Thanks for your continued prayers. We will need them as we move into this period of med transitions that will likely involve more seizures. There is a simple prayer that I pray when I am anxious or upset that I would ask that you pray for Bob:
May he be safe
May he be well
May he be peaceful and at ease
Thank you for your love!
--Megan
No comments:
Post a Comment