Friday, August 14, 2015

An Update as of 8/12/15

Oh Happy Days! After 2 weeks in 3 hospitals, 2 ambulance rides, 3 CT scans, 2 MRIs, IVs, heart monitors, a feeding tube, and a week spent with wires glued to his head, and repeatedly being quizzed on what day it was and who was the president, Bob was finally discharged from the Cleveland Clinic last evening!!

After a whole afternoon of delays of one kind or another, the last thing to be done was to remove the EEG wires that had been glued to Bob’s head for a week and were itching like crazy. At that point, Bob took matters into his own hands and began pulling the wires off himself! That got the staff to come running, but by the time they got there he had them all off and all that was to be done was to soak away the glue.

Bob was very happy to be out in the world again, and I was very happy to have him be so much his old self, when that had at one point been very much in doubt. We had a nice dinner at an Italian restaurant while we waited for his prescriptions to be filled. When we got home to Bob’s sister’s Laurel’s house, Bob headed straight for a hot shower, a blessed pleasure of modern life! After that, we were both ready to turn in early as it had been a good but intense day.

The other happy news of the day was that Bob’s dad was also discharged from his hospitalization. So we were doubly blessed!

We plan to leave for Virginia in the morning and to stop in Charlottesville, where Bob has a four-hour assessment that was previously scheduled for Thursday morning. This is the same assessment that Bob did yesterday that ended up taking most of the day. But with these two assessments done, the two teams of neurologists who will be assessing to see if he is a candidate for the latest technological intervention will have the information they need for his case to go before the respective panels, one at UVA and the other at the Cleveland Clinic. So far, the increased meds Bob is taking have stopped his seizures, so we are grateful and relieved as we await the news of what the panels of doctors think can be done next.

Thank you, thank you, thank you, for all of your prayers, good thoughts, and kind words. They have buoyed and supported us through this crisis.

Megan

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