An Update as 5/27/13

This past week we enjoyed some lovely time with family. Our niece Rebekah graduated from Eckerd College in Florida with a degree in Marine Biology. That created the perfect opportunity for us all to gather for a relaxing week at the beach. We stayed in the charming little village of Passe a Grille.

I am especially grateful that Delta Airlines was as flexible and accommodating as they were because of the number of times our travel plans changed from when we originally booked the trip in January. First we had to push our trip back from Thursday to Friday when Bob was scheduled to get a second dose of Rituxan on Friday. Then because of a prolonged negotiation with our insurance company over payment for the medication, Bob's infusion didn't get started until midday, which caused us to miss our Friday evening flight and to go instead on Saturday morning. We also changed our flight to return on Thursday so that Bob could have his next infusion on Friday. Then midweek it was determined that it might be best to wait until our consultation with the doctors at Mayo Clinic before having more infusions. That meant we could stay at the beach until Saturday. So we changed our flights once again! And because it was for medical reasons (and Bob is a good negotiator) the good people at Delta did not charge us any change fees for all that craziness!

When we returned home, we got to spend a day and a half with Evan, Michelle, and our dear grand baby Everest. 

Through busy days and restful days alike, Bob has continued to have two to four small seizures a day. It takes several weeks for the Rituxan to take effect, so we are hoping it will do the tricksoon. We are eager to get to Mayo next week and hopeful that they can help us find some long-term solutions. In the meantime, we are enjoying the many blessings of life.

On this day of Memory, I hope that you took a moment for gratitude for those you love as well. It is good day to be thankful.

Megan