An Update as of 4/13/13

We have hit a bit of a rough patch since I last posted to the blog. A few days after that post, Bob began having some seizures spaced a few days apart. And then, as they have before, they began to come more and more frequently. We decided that the pulse of steroids every 6 weeks did not seem to be providing the level of protection that we had hoped so we have now changed to a course of oral steroids three days per week. The plan is to have a very slow taper over the next ten months. We are hoping that today turns out to be our first seizure-free day (so far so good!) and that it will be the beginning of a long string of seizure-free days.

It has been a puzzle from the beginning to know how much immune suppression to do and for how long, and this latest episode has just let us know that we needed to do a little more for a little longer than we had planned. Please continue to keep Bob in your prayers as these next few weeks are important ones.

 -Megan